The caregiver role is almost never adopted voluntarily; it is assumed in an atmosphere of necessity and crisis. Caregivers can include spouses, adult children, other family members and friends of the person with aphasia.
At York-Durham Aphasia Centre we help caregivers adjust to their new role and life circumstances. We assist caregivers in their search for information about aphasia and other acquired communication disabilities; their impact and prognosis, how to cope and available therapeutic and support services. We also offer caregiver support groups at specific sites or one-on-one support, within our capabilities.
Frequently Asked Caregiver Questions
“My husband and I seem to have frequent misunderstandings. Is there anything I can do to help?”
Aphasia might make it hard for your husband to understand you when you speak. Aphasia does not affect your husband’s intelligence or social manners. He might be nodding his head when you are talking because he wants to be sociable and mannerly, even though he doesn’t understand you. This might make you think he understands when he does not. It will help if you use communication strategies to verify your husband understands you and vice versa.
“My sister does not want to do anything because she is tired. Should I force her or just follow her pace?”
Stroke and brain injury survivors – including people with aphasia – often tire easily. Try to spread appointments and outings throughout the week and organize them for times when the person has the most energy. Social gatherings with a lot of people are very challenging. Try to arrange for only a few visitors at a time, over short periods of time.
“My wife seems depressed. What should I do?”
Aphasia affects one’s feelings of self-worth. Communication problems, social isolation, loss of control, job loss, changes in family roles are some factors which can contribute to depression. If you suspect that your spouse may be depressed you should talk with a family doctor. An assessment can also be arranged with a psychiatrist or psycho-geriatrician at your local hospital. Anti-depressant medications may be prescribed.
“My friend often cries or laughs inappropriately. Is there anything I can do?”
Sometimes stroke and brain injury survivors cry because they are depressed. Excessive crying or laughter may also be due to brain injury and isn’t necessarily connected with a sad event. Try to divert the person’s attention to another topic or activity; this may help them regain control of their emotions.
For more frequently asked questions click here.